About Storm

My name is Storm, and I have RSD (Reflex Sympathetic Dystrophy). its the devil. very painful and very difficult to live with. I have had it since I got an arm injury in May 2005. June 2006 marks the confirmation of my RSD diagnosis- yes, it took over a year and many doctors to finally agree that is what I have! So after  7 nerve blocks, and months more of increasing, spreading pain, I got a 1/2 confirmation in Nov 2006 (from neuro, still waiting on my pm dr too) that it has been spreading to the rest of my body . I've went through many tests (mris, brain and spinal scans, emgs etc) for dr to rule out other things and to get it confirmed... my dr is now talking about sending me to an 'academic' dr...
I am stuck in bed a lot of the time, using a walker and the wheelchair when I can no longer walk/stand because of the pain and the crippling spasms that make me instable and make me fall over, etc. using a walker w/only one arm is hard, and it makes my good arm worse too, I fight with it every day, but it is hard...
Instead of letting it consume me, I am fighting back - Since my diagnosis was confirmed, I began to take an active role in spreading RSD Awareness. I have joined the RSDSA, adding my name to their voice. I am helping out my new friends out in Cali, President Ashley & Vice President Lorie of Rock Out To Knock Out RSD, Inc., in as many ways that I can - which is so fun since they are two awesome chicks!  I am also putting together Storm's RSD Cookbook - RSD info and easy recipes together in one book - to give help to the RSD community; by spreading awareness, sharing knowledge, helping in the kitchen, and I am donating all the profits to RSD Organizations that are dedicated to awareness & research.  See, giving aid/help to the RSD community helps me fight each day, and it keeps me thinking positive about surviving this monster.  I should point out that there is no cure for RSD as of yet, only treatment options that reduce the pain. And many doctors don't even know about it, but it is not a rare disease! Awareness will lead to better treatments, and hopefully even the cure.

If you have any questions, feel free to drop me a line- Storm@StormsRSDAwareness.com.

~ Thanks for your time. Have a great day & Bright Blessings to you all. ~

Storm's RSD Awareness
PO Box 227
Brownsboro, AL 35741-9998
Storm@StormsRSDAwareness.com